I look healthy don't I? Well I'm not and according to the US Government, I can work. Unfortunately, they are wrong.
In 2002 I was diagnosed with Adult Onset Primary Immune Deficiency. This is the adult version of the Boy in the Bubble Syndrome. This means that as I age, portions of my immune system disappear. So far I have lost IgG, IgG subset 3 and IgA. Its like being a chemo patient or having HIV. I catch everything, have chronic conditions, my body attracts itself when one of the missing immune systems are needed and I have had many body parts removed due to those attacks.
In applying for disability, I was turned down a total of 5 times. The first two times I was turned down, I was on treatments for this condition which cost $10,000 a month. While on them, I was able to work so I could understand the refusal for benefits. Then the treatments almost killed me and the doctors refuse to allow them any longer.
I applied again for help and was turned down, they said I could run an antique store...NOT...I can't be around people all the time and I can't be in a job that requires full commitment of time as you never know when I am going to get sick again. I am down an average of 10 to 20 days month with something.
I appealed and was turned down again, they said I could work at a pool hall....go figure..the doctors looking at the 9 inches of information about my condition are clueless!
I appealed and was turned down again...this time they said "you have many illnesses and conditions that make life difficult but no one thing that makes you disabled". I wanted to die.
I live a subsistence life, get a bit of help from family but for the most part I just do without. The last time I bought anything new to wear was five years ago. I am broke, sad, and whats worse is that there is no cure.
I will live like this, slowly becoming more and more isolated. Unable to be in the public at all, stuck at home (which by the way I can not keep up maintenance on due to the lack of funds so the house is starting to make me sick too). Sometimes I just want to die....but that will come.
I hired an attorney who will get 25% of any money I might get from disability. If I get it. And my luck says I won't. Not to mention it usually takes only 9 months for a hearing but since Indiana only has 3 judges doing these cases and one is on sabbatical while another is sick, only one judge is handling the entire case load so the time has tripled. Thus
this ad. I need to have professionals come and clean up and fix my basement due to mold which keeps me in migraines about 7 days a month. I need to buy an air filter to clean the air in the upstairs of my house since I am in it most of the time. I also need help paying off my car...without it the multiple trips to doctors, labs and hospitals will be impossible. Lastly, I just lost 43 pounds due to a sever illness that lasted 3 1/2 months so none of my clothes fit. I need a sewing machine to fix them. These are the most pressing things. One other could be some credit card debt. I need $2000 to pay off two cards I had to use last year to buy food and medicine.
I am no lay about....I worked hard from the age of 13 until 41...and never complained. I lost many jobs over the years due to illness but always got back on my feet. I lost a few businesses too since they required more than I could give. I work until I nearly pass out and or hurt myself. I have never gotten anything for free until just the other day a neighbor gave me $100...she said it was for all I do for her....I have done nothing but pick up a few sticks in her yard, checked her house while they were away and taught her about some native plants.....an angel as a neighbor is a good thing to have.
I am a survivor of sexual abuse, drug abuse, self abuse and other traumas. These made me strong in some ways and very weak in others. I hate to ask for help....I work for what I get but here I am......help please.